Tuesday, January 24, 2017

Polaris Beard for a Cure

Here is the beard matrix for the Polaris Beard for a Cure

For those Polaris employees who will be involved in the CF Climb for a Cure, either virtually or climbing as part of Team Olivia-Polaris on Saturday, February 11th, 2017, based on donations raised, we will be seeing some pretty creepy, awesome beards by the Polaris guys! 

My sincere thanks to Clark D. for lining this up with all proceeds benefiting the CFF. Visit our CF Climb team page where you can find all of our team members to make a donation to any one of the Polaris guys who you'd like to see sporting one of these facial masterpieces. 

and on that note . . .

as 2017 rolled in with the speed of, oh let's say, Jeff's car . . . I can't believe February is right around the bend. This 2nd semester in school, I'm working with the kids on gratitude. A big word for little hearts but one that holds so much importance. We are working on being more positive, finding good things in every day, good in our errors, good in our faults. Gratitude is important and anything to make us see things more positively, turning that frown upside down, is a win. 

We started yesterday by listing 3 things we were each thankful for. Olivia's list was:
1. a cure for CF, someday
2. my health
3. my family

I find it pretty awesome that she is thankful for something that isn't here yet; a cure. I find it pretty amazing that she is thankful for her health, despite all that she must do and endure to keep her health at where it is and I know Olivia is amazing to see life as she does, she definitely understands and displays gratitude. There is much I can learn from her and this year just as I'm trying to work with the kids on understanding gratitude, I too will work on my own, polish it up and try to 'complain', bitch less and be thankful more. 😊 

This quote is a good start. The kids and I picked this one to go over, relating it to our lives with CF. Yes, we can complain because our lives our deeply rooted with CF, or we can rejoice that CF is a part of our lives. 

It's all about gratitude.

I've said it before and I know I'll say it many times more, but for all the havoc that cf can be, there is also so much good that comes from it. There are days that are hard and icky and filled with sadness and fear, but, there are so many other days that are not. There are many good things, amazing people and unimaginables that have happened and shaped our lives over the past 7 years because of CF. Here are 7 of them: 

1. Team Olivia-Polaris has raised over $100,000 for the CFF to support their efforts in finding a cure.
2. Jeff has an amazing network of co-workers and friends, that most could only hope for.
2. We've met amazing people throughout this journey, many that we call friends.
3. We've learned a lot.
4. We've discovered how many supporters and friends we truly have all with the same hopes of curing CF.
5. We've been lucky enough to be involved in research that is changing the course of CF.
6. We have amazing family and friends who support us no matter what. 
7. We know that every day is a gift, no one is promised a tomorrow and that time is precious.

Gratitude. Everyday. 

Cheers to 2017 and to finding gratitude everyday, because I know that everyday isn't going to be great but I know that we can find things to be grateful for in every day. 

Today we are grateful for the CF Climb, Team Olivia-Polaris, the Polaris Beard for a Cure and Clark D. for lining it up, for everyone that climbs with us, donates to support the CFF and the fact that CF is a part of our lives so that we can support this cause that will change the lives of all those whom have CF. 

Wednesday, January 11, 2017

2017 CF Climb

Please join TEAM OLIVIA-POLARIS in the 

2017 CF Climb
IDS Tower in Minneapolis:
Saturday, February 11th, 2017
9:00 am - noon


The 2017 CF Climb marks our 8th year participating. Every year, I go into this event with a bit more hope and a bit more optimism for the outlook of cystic fibrosis. With the continued support from all of our donors and climbers, I'm reminded with each year how many supporters Olivia truly has. This year however, holds a bit more importance to me. 

2016 was a tough year. As cf so often is full of ups and downs and many uncertanties, we were hit hard with it in May of 2016 when Olivia was admitted to the hospital for her first cf related exacerbation. I knew a hospital admit for cf was not a quesion of "if", but rather a "when". I just didn't expect it already. True, Olivia had been sick: very, very sick for quite awhile. True, I kept telling everyone, from our cf team to family and friends that something just wasn't right, something had to give, no matter what we did and tried, Olivia wasn't getting better. But to say that when Olivia went in for what was supposed to be a pre-op check-up and instead was immediately admitted to the hospital that I wasn't still in shock and awe, would be an understatement. 

For Olivia's entire existence, we have done all that we can to keep her healthy and away from germs and illnesses, probably to what some would consider neurotic, but we did it to offset all that cf is and can be with the hopes that a hospitalizaion, aside from that which she endured upon birth, would be a long ways off. For all that we do, for all the sacrifices we make, to hear that in a matter of weeks that her lungs were functioning at 30% less than what they should have been, was very, very scary. To know that the day before admit, she was dirt biking and playing outside, albeit a bit slower than normal and just one day later was in a hospital bed, was a shock. To say that all 4 of us are forever changed by that hospital stay, is not an exaggeration. To this day, Olivia is deathly afraid of catching a cold or any sickness for that matter that could lead to another hospitalization. 

So with that, yes, this year's climb holds a bit more significance to me. The harsh realities of this disease were thrown in our faces in May, and the very scary depths of this disease were evident. The lasting lingering effects of her exacerbation and the unknowns of the damage it did that cannot be reversed are terrifying and yet the very things that we cannot dwell on, for we will worry ourselves away. We know that no matter what we do, no matter what we sacrifice to keep Olivia as healthy as possible, that yes it does help, but the damage that this progressive disease does cannot be haulted without a cure. 

Yes, we need a cure. True, we are close. Please help us get there.