This past weekend, Landen came down with a cold and we immediately amped up our infection control measures the best we could, to no avail as Olivia ended up catching it too. So this week has been extra busy and stressful, dealing with 2 sick and crabby kids and having to squeeze in 1-2 more treatments daily, on top of the 2 we already do every single day, so time has been flying by. Thankfully, this just seems to be a head cold for both children and hasn't slowed Olivia down one bit. She still runs around non-stop and constantly begs to go outside and when we do go outside, she again is running and playing nonstop so I'm thankful that she doesn't feel too bad as she still has a ton of energy - she is a trooper indeed.
This year has definitely been tough with the kids being sick and all the scary things that pop into a CF mother's head about what the effects are from each illness. You'd think with how many times Olivia's been ill this year and how well she's done fighting off each one, I'd be a tad more at ease and feel a little bit more reassured that things will be okay, but I honestly don't think it's ever something I'll get used to or take lightly as you just never know when a "little cold" will turn into something so much worse for her. So with every onset of an illness, I'm more nervous, more anxious and definitely more stressed watching for symptoms that something else may be going on. Thankfully, I have hope, faith, love and one heck of a strong little girl that has been a fighter so far and continues to fight off each illness that heads her way - everyday I pray she continues to do so. So as this cold is slowly passing for Landen & Olivia, I hope it may be the last one for awhile. Landen only has a few more weeks of school and if he can make it without getting something else we should be in the clear because when we can control the situation(s), our kids usually don't get sick so that will be a blessing for the summer months. I'm definitely looking forward to summer, warmer weather and less illness where we can enjoy spending precious time with family and friends again.
Our first big "summer outing" will kick-off next Saturday, May 5th, 2012 with the "Dreams for Olivia" fundraiser in Windom, MN. It will be a day full of activities to benefit the CFF in honor of Team Olivia Oltmans. Beginning with an already full 73-person golf tournament, a silent auction and evening activities, the day/night will most definitely be unforgettable. Hilary over at Enspired is and has been selling washcloths, hair clips/pins and scarves with 100% of the proceeds going to the CFF. I still find myself sitting here completely amazed at what has all been done in just a few short weeks to prepare and pull this entire event together. All the time and energy that Tyann, AJ and Hilary have invested into putting this event on continues to amaze me. I am really looking forward to the event, seeing the support we have for our daughter on our mission to help find a cure for CF and raising money to help us get there.
There are many days I feel very much alone in my "CF world". After all, I am Olivia's primary care taker, beings I am fortunate enough to stay at home with the kids. I do her treatments, I prepare her meals and snacks and beg and fight with her to eat and drink as much as she can with the hopes that she'll gain an ounce or two. I deal with all of the medical, insurance and doctor stuff, I fight for what I feel is best for her, I ask questions when they need to be asked and I do everything I can in my power to raise money to support the CFF as they continue their research for cure. There isn't another person that I know personally who fully gets what I go through daily or who could wear the shoes I do. Jeff would be next in line of course, but beings he must work to support our family, he only sees a portion of what our CF life is really like day after day. Don't get me wrong, I am forever grateful and cannot express my love for him enough for taking on that burden, to be a sole supporter of a family, especially one with CF involved in itself brings a lot of stress - I love you Jeff and thank you for supporting us. So yes, many days I feel alone because no one but Landen, Olivia and I, know what our days are like day in and day out and that can be a hard bite to chew sometimes. On those days when you want to scream and yell and just say to someone "do you know what I mean?" and have them say in all honesty, "yes, I do", I just don't get that luxury. I know we have the most wonderful family and friends who love us, support us and will do anything for us, that I do know. I am so blessed and thankful for all of you whom have done anything and everything we have ever asked or needed and despite the days that feel to me my own and no one elses, I know we will never be alone in our fight for a cure.
People often ask, "is there anything I can do" and usually there isn't much, this life is ours, these are our cards to play, but the one thing that anyone and everyone can always do for us is to donate, spread awareness and raise money for the CFF to help us find a cure for our daughter. So come Saturday, when I see everything that has been done for this event, when I see all the people there offering their support and when I see all the money we have raised, I will feel so very blessed and I will feel full of hope. Jeff, Landen, Olivia and I, live this CF life every single day, it is ours, however, in the fight for a cure, we have a huge team, we have a ton of support and we will never be alone in that. There are so many other families out there who also live a CF life day in and day out and see all the good and bad that CF is. Even though I don't know another family personally, I do follow their journeys, their stories, their joys and sorrows and I know that if I ever needed to ask someone "do you know what I mean?", there are many other CF mom's out there that would say "yes, I do" and in that I do find comfort. So as we are just under a week away from this awesome event to benefit the CFF, I am thankful and proud to be a part of it, I can't wait to share with you all, how much money was raised through this event. Thank you again Tyann, AJ and Hilary for putting this event on and for all the hard work and energy you've put into doing so. Thank you to everyone who's donated, all the golfers and everyone else who is going to be there - we are blessed and sincerely thank you for joining in our fight to help find a cure for our daughter and all those with CF.
April 2012 in Photos
|Cool new Sunglasses|
|Landen Hunting for Easter Eggs|
|Olivia's Easter Egg Hunt|
|Landen & Grandma Pam |
Flying a Kite on a Windy Day
|Splashing in the Rain Puddles|
|Dress-up Fun with cousin Braelyn|
|Landen's Bug Hat made at Preschool|
|Happy 8th Birthday Shelby|
(We love you "Sister Ding")